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Patiëntenorganisatie Alpha-1 Nederland
Sinds 1997 is er een werkgroep die opkomt voor patiënten met alpha-1 antitrypsine deficiëntie. Vrijwilligers van deze groep geven informatie en brengen mensen met deze aandoening met elkaar in contact.
In 2008 is deze werkgroep omgevormd naar
“Patiëntenorganisatie Alpha-1 Nederland” (P.A.N.).
P.A.N. stelt zich ten doel informatievoorziening, zorg en onderling contact voor Alpha-1 patiënten te verbeteren. Het bestuur van Patiëntenorganisatie Alpha-1 Nederland heeft als taak acties te ondernemen om dit doel te bereiken.
Op deze site van P.A.N. vindt u o.a. medische informatie, gepubliceerde nieuwsbrieven, links naar buitenlandse patiëntenorganisaties en informatie over de hulp- en contactlijn.
